Well, family. I don't have much of an update. While my spirits were high yesterday, today I'm feeling a bit low. I'm frustrated that Scott's condition seems to be worsening and there seem to be no answers in sight. Tests and more tests, but no answers. I truly am not trying to be dramatic, but every day something new pops up. I only post this because it is a private, family blog, so please don't share this information with anybody outside the family...not that any of you would. I haven't shared all of this anywhere.
From the top down, Scott has bloodshot (to the Nth degree) eyes that the doctor claims is jaundice (isn't jaundice yellow???), headaches, extreme (and I mean EXTREME) dry mouth, fever, what appears to be strep but tests negative for strep, a bad cough, shortness of breath, etc...etc...his kidneys, liver and lungs all seem to not be working properly. He is extremely fatigued and achy all over, like with the flu. He has no appetite, and cannot rest for very long due to all the things I've mentioned here. We are both prone to anxiety over his condition, which only hinders his ability to rest. I will tell you, Scott is not one for exageration. If he feels awful, he feels awful. And he feels awful. Every day it seems something new happens...something progresses. And every day we get three conflicting stories from three different doctors regarding what they *think* it might be. We are consulting with our primary care physician, a GI specialist and an infectious disease specialist. Every day they do more tests but do NOTHING to treat him. I'm just increasingly scared that things are progressing out of their control. This morning I am going to ask his doctor if I should move him to another hospital, one better suited to this kind of issue.
I'm trying to be strong for Scott, but I am scared beyond words. I miss my happy, loving babies, though I know they are in good hands. We have been so blessed, that I can't help but wonder if our time is up. I know that sounds awful, but that's just where I'm at right now.
Please continue the prayers. It does mean a lot knowing that all of you are out there thinking of us.
Subscribe to:
Post Comments (Atom)
Thanks for the update. You must be so frustrated with the lack of answers.
ReplyDeleteHugs, kisses, prayers and our love. Kathy & Jim
ReplyDeleteAs Aunt Kathy wrote----more hugs, kisses and prayers along with our love,
ReplyDeleteTracy, it is difficult to stay strong as you remember gram from g'pa's hospital room. I'm with your feelings all the way and only wish there were some message that would make it better.